is a Fulbright Scholar focused on conducting a research program of neuro-protective, neuro-regenerative and neuro-rehabilitative clinical trials in cerebral palsy. She is Cerebral Palsy Alliance Chair of Allied Health, and co-founder of the Cerebral Palsy Alliance Research Institute, affiliated with Brain and Mind Centre and Faculty of Medicine and Health at The University of Sydney. She has significant track record in generating and translating new cerebral palsy intervention knowledge and her work in evidence-based practice has led to changes in clinical care in 27 countries.
https://au.linkedin.com/in/ionanovak
works at the Centre for Clinical research Västerås, Uppsala University and at the Department of Orthopaedics, Lund University. She is the co-ordinator of CPUP Sweden. CPUP was started in 1994 with the aim of creating a system where all people with CP or CP-like symptoms are identified as early as possible and followed in a structured way. The follow-up program has thus far prevented hip dislocation in roughly 450 people with CP in Sweden and has subsequently been implemented in other countries.
@ERodbyBousquet
https://se.linkedin.com/in/elisabet-rodby-bousquet-09605a14
qualified as a Speech and Language Therapist at Birmingham University in 1998 and has worked predominantly with children, running services for both pre-school and school-age children across London. More recently she has worked at City University supporting student speech and language therapists and also practices as a life coach. Emma is married and mum to 3 young and active children.
Emma was born with Cerebral Palsy and has seen a significant decline in her mobility in recent years leading to several surgeries and having to give up work. It was her frustration at the lack of knowledge and understanding of Cerebral Palsy as a disability affecting adults that spurred her on to begin campaigning. In 2018 she founded the charity Adult Cerebral Palsy Hub, now renamed Up – The Adult Cerebral Palsy Movement, to campaign for better support and services and give voice to the adult Cerebral Palsy community.
@upmovement_cp
https://uk.linkedin.com/in/emma-livingstone-080967a4?trk=people-guest_people_search-card
Dr Louise Baker is a consultant in Neurodisability and practices in the CRC and CHI at Temple Street.
Giuliana is a paediatrician with over 25 years of clinical, education and research experience in the field of childhood onset neurodisability, with a strong bioethical underpinning. Giuliana’s work has focussed on the care of children and adolescents with complex disability and chronic medical conditions, with a special interest in perioperative care and the ethical issues that arise in decision making and communication for this complex group.
Giuliana is the Stream Leader, Physical Disability, in the department of Neurodevelopment and Disability, a member of the Clinical Ethics Response Group and the End-of-Life Committee at The Royal Children’s Hospital, Melbourne. She is a Clinical Associate Professor, in the Department of Paediatrics, University of Melbourne and an Honorary Fellow at The Murdoch Children’s Research Institute, Melbourne.
https://au.linkedin.com/in/giuliana-antolovich-668249249
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