CRC Empowering Change Conference Day 1

Day 1 – Thursday 10^th October

09:00 – 09:40 - CP... Current challenges - Dr Louise Baker
09:40 – 10:20 - What we have learned from 30 years of systematic follow up of CP in Sweden - Dr. Elisabet Rodby Bousquet
10:20 – 11:30 - Ethical Dilemmas in Neurodisability - Dr. Giuliana Antolovich

11:30 – 11:50 - Brachial Plexus Palsy - Professor Bryan Lynch
11:50 – 12:10 - Surgical intervention within Brachial Plexus Palsy - Mr.Kevin Cronin
12:10 – 12:30 - Case Studies with Brachial Plexus Palsy - CRC MDT Team
12:30 – 13:00 - Physiotherapy management of Brachial Plexus Palsy - Hazel Brown
13:00 – 13:30 - Orthopaedic management of Brachial Plexus Palsy - Professor Tom Quick

11:30 – 12:00 - Youth Experience Matters: What does physical activity participation look like for adolescents with physical disability and what really matters for participation? - Karen Brady and Dr. Ailish Malone, CP-Life Research Centre, RCSI.
12:00 – 12:30 - Physical activity among children and adults with visual impairment. What motivates and stops participation? - Dr. Lisa Flynn, Children’s Health Ireland
12:30 – 12:40 - 'Let’s get physical' movement break
12:40 – 13:10 - Listening and sharing physical activity experiences with a panel of young people with disability

Facilitated by Alix Crawford, The Mae Murray Foundation and Dr. Karen McConnell, Queen’s University Belfast

13:10 – 13:30 - Open questions and answers for all panellists and presenters

11:30 - 12:20 - Eating and Drinking with Acknowledged Risk (EDAR) in Paediatrics – why is it different? - Georgina Feint , Highly Specialist Speech & Language Therapist in Paediatric Dysphagia, Evelina London Children’s Community Team
12:20 - 12:45 - Empowering Choice: Client and Team Perspectives on Eating and Drinking with Acknowledged Risk (EDAR) - CRC Team
12:45 - 13:30 - Saliva Control - Dr Louise Baker, Consultant Paediatrician in Neurodisability , Central Remedial Clinic

14:30 - 15:00 - Striving to build clinical and community relationships for physical activity participation -Eva O’Gorman, Central Remedial Clinic and Nicky Hamill, Irish Wheelchair Association Sport
15:00 -15:30 - Community based gym exercise for non-ambulant adults with childhood onset disability in Northern Ireland -Dr. Karen McConnell, The Mae Murray Foundation and Alix Crawford and Talia McDowell, The Mae Murray Foundation
15:30 - 15:40 - 'Let’s get physical' movement break
15:40 - 16:00 - The application, impacts and perceived value of the ‘F-Words for child development’ with multiple stakeholders in a special educational setting in Ireland. - Dr. Hazel Killeen and Dr. Mairead Dempsey ,University of Galway
16:00 - 16:15 - Knowledge - sharing and relationship - building for participation. A World Café approach - Karen Brady, CP-Life Research Centre, RCSI
16:15 - 16:30 - Open questions and answers for all panellists and presenters

Mr. Mike Dodds, Consultant Orthopaedic Surgeon, CRC, Mater Misericordiae University Hospital and CHI at Temple Street, Dublin.
Mr. Robert Freeman, Consultant Orthopaedic Surgeon, The Robert Jones and Agnes Hunt Orthopaedic Hospital, NHS, Oswestry, Shropshire, UK.
Mr. Michael O’Sullivan, Consultant Orthopaedic Surgeon, CRC and CHI at Temple Street, Dublin.
Case discussions by CRC Gait Laboratory and CRC Physiotherapy clinicians.

14:30 - 15:00 - Avoidant Restrictive Food Intake Disorder (ARFID): where are we now? - Dr Veronica Kelly, Consultant Paediatrician in Neurodisability, Central Remedial Clinic
15:00 - 15:40 - Nutritional deficiencies and ARFID - Hilary Colgan, Dietitian Manager, Central Remedial Clinic
15:40 - 16:30 - It Takes a Village – Multidisciplinary Approach Complex Feeding MDT